Click on the link below, to make a donation to HFME via Paypal.
PayPal accepts all major credit cards as well as payments from bank accounts.
Note that the HFME is in the earliest stages of the process of acquiring an ABN, a licence to fundraise, and tax deductible donation status. This process is quite difficult for the severely affected M.E. patient! Apologies that it is taking so long.
An announcement will be made on this page when these applications are completed.
Please support these initiatives if you are able to. Every bit helps.
The iHerb affilation scheme
If you are a new customer to iHerb, and you put in the 'JOD573' code when you order, you get 5$ off your first order, and 4% of your order total for the next year will be donated to the Nightingale Research Foundation and HFME. (All proceeeds will be split evenly between these two groups.)
iHerb is a US online shop that sells everything from neti pots, to NADH, to ubiquinol and their international postage charges are cheaper than many others by a large margin.
The code is JOD573 and the website is www.iherb.com - note that you must put in this code when you make your purchase in order for a donation to be made!
The Amazon affiliation scheme
If you buy any books (or other Amazon products) using this Amazon link, a small percentage of your order total will be donated towards funding the advocacy efforts of the HFME.
Art sales and donations
30 - 50% of the purchase price on each artwork by Jodi Bassett will be donated towards M.E. research and advocacy. Proceeds will be split evenly between Dr Hyde's Nightingale Foundation and the HFME.
Prices for oil paintings start at $60, and prints at $21 - all prices include FREE postage worldwide.
ME is a comparable illness physically to Multiple Sclerosis and yet ME research receives nowhere near the level of government funding that MS does - this despite the fact that ME is at least as common as MS and can also often be far more physically disabling.
Studying vague and mixed groups of 'fatigue' sufferers is of no benefit to any patient group; particularly as many of those conducting this 'research' are known to have vested interests in certain outcomes. (M.E. and 'CFS' are not the same. The bogus disease category of 'CFS' must be abandoned. See Misdiagnosis and Smoke and mirrors for more information).
M.E. is an infectious neurological illness which affects all races and socio-economic groups and has been diagnosed all over the world with a similar strike rate to multiple sclerosis. Children as young as five can get M.E., as well as adults of all ages. M.E. can be extremely disabling. 25% of M.E. sufferers are severely affected and housebound and bedbound. In some cases Myalgic Encephalomyelitis is fatal. Governments around the world are currently spending $0 a year on M.E. research.
ME is in reality one of the most poorly funded illness today; considering its brutal severity and the vast numbers of patients involved and the number of patient deaths, it is a worldwide disgrace. If you are able to make a small donation - THANK YOU on behalf of everyone who has Myalgic Encephalomyelitis.
In addition to research, funding Myalgic Encephalomyelitis advocacy groups and campaigns is also very important: if we can win the political war with good advocacy and activism, then much more money for real research will come from that than we'll ever get by just funding it ourselves. Thus funding advocacy is just as important, if not more far important, than funding research.
The Nightingale Research Foundation
M.E. expert Dr. Byron M. Hyde is Founder and Chairman of The Nightingale Research Foundation (The Nightingale research foundation are the creators of The Clinical and Scientific Basis of Myalgic Encephalomyelitis edited by Byron Hyde, M.D. - very possibly the best book on M.E. there is)
'The Nightingale Research Foundation is a charitable foundation located in Ottawa, Canada. The Foundation was incorporated in 1988 to conduct and assist research into the cause and cure of Myalgic Encephalomyelitis and to serve as an educational institution for the Canadian public, physicians, nurses, teachers and their professional societies.
Since its inception, the Foundation has provided technical assistance to physicians as well as help and encouragement to thousands of Canadians and Americans who have been disabled by M.E. As part of its mandate, it has provided accurate knowledge of M.E to health care professionals, teachers' federations, labour unions, governments and the courts.
The Nightingale Research Foundation is totally dependent on its book sales and donations in order to continue its work. Research has given us the ability to better understand the causes of M.E., and to locate and minimize the myriad of physiological impairments caused by the disease process. Much more research work needs to be undertaken to discover the cures required to cope with this debilitating disease.
We cannot achieve this without the support from the M.E. community - who, unfortunately, are usually the ones hardest hit financially. To those of you who would like to join in our quest through the purchase of our book and/or donation, please complete the Request Form - no donation is too small.
If corporate Canada or America is looking in, we hope you realize how desperately funds are needed to deal with this ever-growing problem. Your help will go a long way to help those afflicted with a chronic illness that has managed to remain so well-hidden from public awareness. Please complete the Request Form - on behalf of the M.E. community, we are very grateful for any assistance you can provide.'
See http://www.nightingale.ca/index.php?target=support for more information and to make a donation.
(Hands down - donations to the HFME aside - this is the best use of any money that you want to put towards M.E. research and advocacy. Dr Byron Hyde M.D. is not just the world's preeminent ME authority, he also has the GUTS that so many other specialists lack to stand up for what is correct instead of what is just popular.)
RiME Campaigning for Research into Myalgic Encephalomyelitis
This UK group (set up because of intense dissatisfaction with the national ME charities during the last decade) have led a number of independent campaigning efforts and do some truly excellent work in advocating for people with Ramsay's M.E. (as opposed to vague fatigue entities as with many other groups) and are greatly in need of our financial support to continue this work on our behalf.
To read some of RiME's newsletters see the Research into M.E., (RiME) page on this site.
Paul Davis writes: 'RiME doesn't run on a shoe-string budget, it runs at a deficit. We used to send info. but, of late, have had to cut right back due to lack of funding. So, fund RiME or lose it..'
See the RiME website or email firstname.lastname@example.org for more information and to make donations. It would be a real tragedy if this group were to be disbanded due to a lack of funds.
The United Mitochondrial Disease Foundation
(Strong evidence exists to show that M.E. is a disease which involves the mitochondria - see Muscle Research for more information)
The United Mitochondrial Disease Foundation is redefining hope for families affected by mitochondrial diseases – hereditary disorders, now considered as common as childhood cancers.. UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Please help us redefine hope for the thousands of children and adults whose lives are compromised or shortened by the effects of mitochondrial disease. We need your support.
See http://www.umdf.org/about_umdf/donate.aspx for more information and to make a donation.
The HFME is unable at this time to support any other groups as we feel that further research and advocacy for 'ME/CFS' is not just unhelpful but counterproductive. The vast majority of groups which use the term M.E. in some way are in fact not M.E. groups but 'CFS' or 'ME/CFS' groups.