NEW WEBSITE: Note that the The Committee for Justice and Recognition of M.E. website has moved, click here to view the new site. All links to papers by this group on the HFME site will be updated soon. At this pont however only the links on this page link to the new CJRME website.
The Committee for Justice and Recognition of Myalgic Encephalomyelitis
The Committee is an international patient based association dedicated to promoting Justice for the victims of Myalgic Encephalomyelitis; and we are dedicated to achieve the full public Recognition of the dangers of this worldwide disease epidemic. We will demand that the national health agencies of all governments admit that Myalgic Encephalomyelitis is a serious disease and an increasing worldwide health disaster.
Toward that end The Committee will disclose the truth about the disease and history of myalgic encephalomyelitis. We will present the medical facts about ME, and examine the politics and motivations that have led to the public health agencies’ mismanagement of, and dishonest response to this disease epidemic.
Worldwide Epidemic/Over 1 Million in U.S. Atypical Polio, Myalgic Encephalomyelitis, Gulf War Syndrome Vaccines and Toxic Chemicals Government Agencies Obscuring the Evidence
We are here today, because a widespread epidemic of Myalgic Encephalomyelitis has descended upon this country. In less than twenty years time there are now over 1 million victims in the US alone and millions more worldwide. We are here because the national health agencies have not addressed this danger to the public health nor sought to find the cause or remedies for the suffering.
We are here to inform the public that the national health agency policies are subjecting patients to a systematic denial of medical services and are maintaining doctors all across this country ignorant about this disease. These health agency policies have ensured that the cause of this disease is not discovered. These policies impact the health of thousands already disabled by ME and continue to place everyone at risk.
A principal issue must not be overlooked: Why has ME, which has an historical relationship to Polio, exploded into a worldwide epidemic, and what is the inordinate fear of the DHHS to recognize this and discover its cause?
Just twenty years ago an Epidemic of the infectious neurologic disease Atypical Polio began to skyrocket like never before and the Government agencies have been covering it up ever since. Thousands have died and millions are now disabled.
No CFS definition defines a neurological disease. All definitions which wear the 'f' word (ie. fatigue) in their name are not ME nor neurological. They are definitions of fatigue conditions. And when these definitions were written it was not neurological ME which they were attempting to define.
The very alarming and most disturbing aspect of this disease is that amid this epidemic explosion of disease, the national public health agencies failed to act, and ignored the pleas from doctors in affected communities. In the USA, the Centers of Disease Control and Prevention (CDC) at first ignored the reports, then without any need for evidence immediately declared that there were no outbreaks, then acted to delay any investigation. Subsequently the CDC responded by obscuring the evidence, and confusing the medical community and the public regarding the nature, history and identity of this disease.
This unnatural response became formal policy in 1988 when the CDC controlled panel renamed this disease CFS, over the vehement objections of the experienced medical specialists, who advised that what was being observed was a widespread reemergence of Myalgic Encephalomyelitis. In effect a group of government employees invented Chronic Fatigue Syndrome and disregarded the medical experts. Pursuant to this policy to conceal the identity of ME, medical journals were encouraged to never again publish reports about Myalgic Encephalomyelitis but only articles that discussed fatigue.
Much of this history suggests that the CDC knew something that the medical community did not. Rather than investigating this epidemic, the CDC appears to be acting to cover it up, with a clear disregard for the consequences, the many fatalities and the huge numbers of disabled citizens.
A New Clinical Entity ? THE LANCET. LONDON : SATURDAY, MAY 26, 1956
The complete answer to this question is clearly important and not yet fully established. However the families of patients that have succumb to this disease may hold a different opinion. These few brief reports on this page will help demonstrate the diverse course and consequence of infection with Myalgic Encephalomyelitis. ME has a variety of manifestations and outcomes, some patients improve but many more follow a chronic trajectory. Lifelong disability is common.
The full range of symptoms and consequences of ME are too numerous to fully discuss here, however the most dangerous can be described as related to three factors. Infection of the brain, Metabolic changes and Immune dysfunction.