The Hummingbirds' Foundation for M.E.

The Hummingbirds' Foundation for M.E. (HFME) is fighting for the recognition of M.E.,
and for patients to be accorded the same basic human rights as those with similar
disabling and potentially fatal neurological diseases such as M.S.

M.E.-ites United

MEites United is a group (run by Jodi Bassett) where people with the organic neurological, cardiac, immune and neuroendocrine illness Myalgic Encephalomyelitis (classified at G93.3 by the World Health Organisation) can meet other people with the same illness for advice, support and new friendships.  We might also dicuss politics and activism strategies a little bit as well maybe (illness allowing). Anyone who has (or cares for someone with) M.E. is welcome.

This is also a group that cares about challenging the myths about 'CFS' and ME and isn't prepared to accept how things are now; where people with ME are abused/neglected etc. You wont hear the same old 'I have a miracle cure for CFS' and 'oh I am just so tired!'and 'FM/Lyme/Candida is pretty much the same illness' and 'CFS is helped by exercise isn't it?' and 'aren't the CDC doing a great job to help us now?' stuff here! We know that knowledge is power and that debunking these myths is really important.

Please read the group's homepage fully before you join though please.

This group also contains a penpals section, for those who are unable to write much on the computer and who would prefer to make friends by snail mail. (You'll be sent an email explaining how to sign up for a penpal when you join the group).

New members are very welcome!

(Australian + Worldwide group)

Severe M.E.-ites United

This is a new support group (run by Jodi Bassett) for severely affected and progressive M.E. sufferers - and their families and carers. It is called Severe MEites United.

This is a group where people with the organic neurological, cardiac, immune and neuroendocrine illness Myalgic Encephalomyelitis (classified at G93.3 by the World Health Organisation) can meet other people with the same illness for advice, support and new friendships.

The emphasis in this group is on people with the more severe form of M.E. or progressive M.E. ie. Those who are bedbound, housebound, or wheelchair bound - or very close to it. (ie. You can leave the house once a month or less, and are out of bed less than 3 hours a day.) Note that this group is restricted only to those sufferers who are this severely affected with M.E. Anyone who has (or cares for someone with) this degree of severe M.E. is welcome.

This is a group that cares about challenging the myths about 'CFS' and ME and isn't prepared to accept how things are now; where people with ME are abused/neglected etc. You wont hear the same old 'I have a miracle cure for CFS' and 'oh I am just so tired!'and 'FM/Lyme/Candida is pretty much the same illness' and 'CFS is helped by exercise isn't it?' and 'aren't the CDC doing a great job to help us now?' stuff here! We know that knowledge is power and that debunking these myths is really important.

This group also contains a penpals section, for those who are unable to write much on the computer and who would prefer to make friends by snail mail. (You'll be sent an email explaining how to sign up for a penpal when you join the group).

Please read the group's homepage fully before you join though please.

New members very welcome!

(Australian + Worldwide group)

More groups

Growing up with M.E. is a new Online Group aimed particularly at younger people with M.E.  There are no defined age limits. Children may join and members can remain for as long as they gain benefit from membership.

PWC Chat – everyone with ME welcome (US + Worldwide group)

CFIDS Arts - for any writers, painters or artists of any kind with ME (US + Worldwide group)

These are just a few of the many support groups available. To find more go to www.groups.yahoo.com and search for groups to join using keywords like CFS, CFIDS or Myalgic Encephalomyelitis. There are TONS of ME support groups listed! (But also a lot of 'fatigue' based groups as well, CFS means every different things to different people of course so don't be scared to ask them which they are referring to; M.E. or fatiguing illnesses under the umbrella term CFS). Lots tend to be dormant though so make sure you check how busy they are before you join – you want to actually have someone else posting in the group with you if possible! It can also take a while sometimes to find a group that suits you and you might have to join more than one group to find the right one for you, but do persevere – it’s really worth it when you find a good one.

(Note that I cannot and do not vouch for the quality or integrity of any of the medical or political information about M.E. given on any of the above groups.)

If you know of a good M.E. support group, please let me know; particularly if it is a good and politically/medically aware group as these are very hard to find!

(The group doesn't have to be politically active, just knowledgeable enough that they know the difference between the basic facts about M.E. and all the propaganda surrounding both M.E. and CFS would be wonderful. Such groups are far and few between unfortunately.) Jodi Bassett

Chat and support on Facebook

Support for carers of people with M.E. 

A new Facebook group has been created for carers of M.E. patients. Highly recommended for all carers, especially as it's politically aware and on board with Hyde's work explaining 'CFS' is always a misdiagnosis and not the same as M.E.! Created by Jayne Eldred.

'A group to support the carers of people with ME (and other chronic diseases if you like!). Let's give each other support and have a place to talk about the reality of living with ME. A place to discuss anything and everything, as well as light-hearted banter! Please join if you are a carer or if you are someone who wants to support people who are in the carer role for someone with ME.'


The HFME Facebook group

This group isonly minimally interactive, and does not provide any services other than occasional listings of site updates, but may be an easy way to let friends and family members know the basics about M.E. and/or HFME and to connect with politically aware M.E. patients. Click here to become a member of the HFME Facebook group.

Subscribe to the HFME newsletter!

To subscribe just click here

Live Support

Exciting book news!

Click here to purchase the first HFME book!


The book 'Caring For The M.E. Patient' by Jodi Bassett includes a Foreword by international M.E. expert Dr Byron Hyde.

He writes:

"There is so much false information that is picked up and disseminated it is near impossible to hold one’s head above the water and sift through this morass of misinformation. Any attempt to seek the truth is always a major difficulty. Somehow, Jodi Bassett and Hummingbird have managed to plow through this field of weeds."

"This is a book that deserves being read, not only by patients and physicians with an interest in M.E. but the bureaucrats in the USA Centers for Disease Control who have done so much damage to the understanding of M.E. I recommend her book to all and wish it every best success."

Paperback $18.95
Hardcover $22.95