The Hummingbirds' Foundation for M.E.

The Hummingbirds' Foundation for M.E. (HFME) is fighting for the recognition of M.E.,
and for patients to be accorded the same basic human rights as those with similar
disabling and potentially fatal neurological diseases such as M.S.

HFME information guides

This website is so large that its features can no longer all be taken in at a glance. In order for site visitors to find the information they need more quickly, the new Information Guides page features sections relevant to each of the different types of visitors to the site. Guides available so far include the following: (click on the most appropriate description)

Guides available so far include the following: (click on the most appropriate description)

  1. Severe M.E. patients
  2. M.E. patients
  3. Patients given a ‘CFS’ diagnosis (but that do not have M.E.)
  4. Doctors
  5. Carers looking after M.E. patients
  6. Friends and family of M.E. patients
  7. Parents of children with M.E.
  8. Members of the public who would like to know a little more about the disease
  9. Media and politicians
  10. Human rights groups

Severe M.E. patients

Reading, thinking and being online is so difficult with very severe M.E. so I'll try to be as brief as possible.

To learn some of the basic facts of M.E. see: What is M.E.? Summary (2 pages) or What is M.E.? Super Summary (1 page)

Treating and living with M.E.  is THE most important paper for M.E. patients! It is an overview on how to manage M.E. as well as how to treat and improve it.

If you are able to read more than that, you might like to also read: The 2 page M.E. The Medical Facts - Summary and The M.E. Symptom Summary

There is also information available on treating M.E. and coping with M.E.:

Information on confirming a M.E. diagnosis through testing:

Information to help friends and family members understand M.E. better:

The most important papers for carers are:

For information specific to severe M.E., see also: The severity of M.E. page.

If you do better listening to audio than reading, check out: Information in audio or video format

If you do better reading information on paper than on the screen, you can go to the new Document Downloads page and download/save as many documents as you need, to print later, in a few minutes. Large text versions are available of all major papers.

The new Caring for the M.E. Patient book is HIGHLY recommended for all M.E. patients.

If you're extremely ill and disabled and are having real problems downloading files, send an email to this email address and assistance will be provided, if possible. (If you specify which files you need, and in what format, files may be able to be emailed to you directly).

If you are able to read more information than this, see the 'information guide for M.E. patients' below.

M.E. patients

These are some of the main categories of information you might need if you have M.E.:

To learn some of the basic facts of M.E. see:

Information on treating M.E. and coping with M.E.:

Information on confirming a M.E. diagnosis through testing:

Information to help friends and family members understand M.E. better:

The most important papers for carers are:

The most important activism and advocacy papers are:

See also articles by Dr. Elizabeth Dowsett and Dr Byron Hyde. These are the world's leading M.E. experts. You may also like to view the Articles and research sorted by topic and Articles and research sorted by author sections which contain links to hundreds of articles. Sections include:

Patient accounts of M.E. you may like to read include:

You might also like to pass the following papers on to patients misdiagnosed with 'CFS':

Other site features/papers you may find useful include:

If you do better listening to audio than reading, check out: Information in audio or video format

If you do better reading information on paper than on the screen, you can go to the new Document Downloads page and download/save as many documents as you need, to print later, in a few minutes. Large text versions are available of all major papers.

You can also print webpages like this one, straight off the site.

The new book Caring for the M.E. patient is highly recommended for all M.E. patients.

If you'd like to be informed by email of all new additions to the site, just send an email to this email address with 'newsletter' in the subject line.

Patients given CFS diagnosis (but that do not have M.E.)

The most important papers you NEED to read if you have been told you have 'CFS' or you identify as having 'CFS' are:

These papers have been created especially for patients in your (very unfortunate) position. Please don't just accept a 'CFS' misdiagnosis, you are worth proper medical care and a correct diagnosis and treatment.

See also:

It is also highly recommended that you read either the 10 page What is M.E.? paper, or the 2 page summary of this paper: What is M.E.? Summary

There is also a lot of information very relevant to you in video and audio formats, check out: Information in audio or video format

Doctors

If you would like to learn more about how to correctly identify M.E., please read What is M.E.? or (even better) What is M.E.? Extra extended version.

To read more about why 'CFS' is never a useful diagnosis, and why a diagnosis of 'CFS' can only ever be a misdiagnosis see Myalgic Encephalomyelitis is not fatigue, or 'CFS'  along with The misdiagnosis of CFS.

See also: Who benefits from 'CFS' and 'ME/CFS'? and M.E. vs MS: Similarities and differences 

For more information on diagnosis and testing appropriate for M.E. see: Testing for Myalgic Encephalomyelitis (this paper includes links to Dr Hyde's 'Nightingale Definition of M.E.' which is essential reading for any doctor with an interest in M.E.)

For more information on treating M.E. and avoiding inappropriate treatments, and so on, see: