The Hummingbirds' Foundation for M.E.

The Hummingbirds' Foundation for M.E. (HFME) is fighting for the recognition of M.E.,
and for patients to be accorded the same basic human rights as those with similar
disabling and potentially fatal neurological diseases such as M.S.

HFME references

All of the information concerning Myalgic Encephalomyelitis on this website is fully referenced and has been compiled using the highest quality resources available, produced by the world's leading M.E. experts.

More experienced and more knowledgeable M.E. experts than these Dr Byron Hyde and Dr. Elizabeth Dowsett in particular do not exist.

Between Dr Byron Hyde and Dr. Elizabeth Dowsett, and their mentors the late Dr John Richardson and Dr Melvin Ramsay (respectively), these four doctors have been involved with M.E. research and M.E. patients for well over 100 years collectively, from the 1950s to the present day. Between them they have examined more than 15 000 individual (sporadic and epidemic) M.E. patients, as well as each authoring numerous studies and articles on M.E., and books (or chapters in books) on M.E. Again, more experienced, more knowledgeable and more credible M.E. experts than these simply do not exist.

The papers on this site merely provide a brief summary of some of the most important facts of M.E. They have been created by a well-read layperson purely for the benefit of those individuals without the time, inclination or ability to read each of the large number of far more complex and lengthy source papers. A full list of references is given at the end of each paper however, and these original references are very highly recommended as essential additional reading for any physician (or anyone else) with a real interest in Myalgic Encephalomyelitis. 

Governments around the world are currently spending $0 a year on M.E. research.

Considering the brutal severity of the illness, and the vast numbers of patients involved, ranging in age from two to adults, this is a worldwide disgrace. How much longer will the world be fooled by the paper-thin CFS scan, which has been clearly proven to be merely financially motivated?  The fiction of CFS represents outright medical fraud, involving serious medical abuse and neglect of patients, on a truly massive scale.

Not everyone was taken in by the CFS insurance scam however. A small but dedicated group of M.E. experts have each examined many thousands of individual M.E. patients and have made many remarkable discoveries about the pathology of M.E. as well as confirmed many times over what was already known about M.E. prior to 1988, before M.E. research became tainted by fatigue and CFS.

A sample reference list is included below. These papers are highly recommended additional reading.

Jodi Bassett, 2009

The HFME reference list

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  2. Acheson, D 1956, A New Clinical Entity? THE LANCET. LONDON : May 26 1956:789-790
  3. Acheson, AD 1955, Outbreak at The Royal Free, Lancet 20 August 1955:304-305
  4. Acheson, AD 1959, The Clinical Syndrome Variously Called Benign Myalgic Encephalomyelitis, Iceland Disease and Epidemic Neuromyasthenia, Am J Med 1959:569 595 (Also: In The Clinical and Scientific Basis of Myalgic Encephalomyelitis, Hyde, Byron M.D. (ed) The Nightingale Foundation, Ottawa, pp. 129-158.)
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  8. Bagnall, Gurli 2005, COERCION, CORRUPTION AND CONSPIRACY: A LETHAL MIX, [Online], Available: http://www.hfme.org/wbagnall.htm
  9. Bagnall, Gurli 2005a, What is it About Psychiatry? [Online], Available: http://www.hfme.org/wbagnall.htm
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  11. Bagnall, Gurli 2004a , COOKING THE BOOKS [Online], Available: http://www.hfme.org/wbagnall.htm
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  13. Bassett, Jodi 2010, The Ultra-Comprehensive Myalgic Encephalomyelitis Symptom List [Online], Available: http://www.hfme.org/themesymptomlist.htm
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Note

Before reading this research/advocacy information given in the above links, please be aware of the following facts:

1. Myalgic Encephalomyelitis and ‘Chronic Fatigue Syndrome’ are not synonymous terms. The overwhelming majority of research on ‘CFS’ or ‘CFIDS’ or ‘ME/CFS’ or ‘CFS/ME’ or ‘ICD-CFS’ does not involve M.E. patients and is not relevant in any way to M.E. patients. If the M.E. community were to reject all ‘CFS’ labelled research as ‘only relating to ‘CFS’ patients’ (including research which describes those abnormalities/characteristics unique to M.E. patients), however, this would seem to support the myth that ‘CFS’ is just a ‘watered down’ definition of M.E. and that M.E. and ‘CFS’ are virtually the same thing and share many characteristics.

A very small number of ‘CFS’ studies refer in part to people with M.E. but it may not always be clear which parts refer to M.E. The
A warning on ‘CFS’ and ‘ME/CFS’ research and advocacy paper is recommended reading and includes a checklist to help readers assess the relevance of individual ‘CFS’ studies to M.E. (if any) and explains some of the problems with this heterogeneous and skewed research.

In future, it is essential that M.E. research again be conducted using only M.E. defined patients and using only the term M.E. The bogus, financially-motivated disease category of ‘CFS’ must be abandoned.

2. The research referred to on this website varies considerably in quality. Some is of a high scientific standard and relates wholly to M.E. and uses the correct terminology. Other studies are included which may only have partial or minor possible relevance to M.E., use unscientific terms/concepts such as ‘CFS,’ ‘ME/CFS,’ ‘CFS/ME,’ ‘CFIDS’ or Myalgic ‘Encephalopathy’ and also include a significant amount of misinformation. Before reading this research it is also essential that the reader be aware of the most commonly used ‘CFS’ propaganda, as explained in A warning on ‘CFS’ and ‘ME/CFS’ research and advocacy and in more detail in Putting research and articles on Myalgic Encephalomyelitis into context.

 

Final note

It is a myth that there is no evidence for M.E.  The problem is that this evidence is ignored by those in positions of power, not that it doesn't exist.

Disclaimer: The HFME does not dispense medical advice or recommend treatment, and assumes no responsibility for treatments undertaken by visitors to the site. It is a research-information and advocacy resource only. Please consult your own health-care provider regarding any medical issues relating to the diagnosis or treatment of any medical condition.

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The book 'Caring For The M.E. Patient' by Jodi Bassett includes a Foreword by international M.E. expert Dr Byron Hyde.

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