The Hummingbirds' Foundation for M.E.

The Hummingbirds' Foundation for M.E. (HFME) is fighting for the recognition of M.E.,
and for patients to be accorded the same basic human rights as those with similar
disabling and potentially fatal neurological diseases such as M.S.

Myalgic Encephalomyelitis book reviews

Myalgic Encephalomyelitis book reviews are in several different sections

  • The BEST Books on M.E.,
  • Other excellent Books on M.E.,
  • Books with some good bits BUT...,
  • Books not directly related to M.E., 
  • Books best avoided/burned

An overview of each section is given on this page, below.

Please note that all reviews on books related to the topic of health, healing, diet and nutrition have now been moved to the new Health, Healing & Hummingbirds website.

For those of you eager to buy some good M.E. books TODAY, you may be interested in looking at the 'Amazon M.E. Booklist' links (at the bottom of this page) or the 'A reading guide for M.E. patients' section (at the bottom of this page).


Note: Both the ability to read and also to buy M.E. books are often in very short supply when the illness is severe so critical book reviews are important so that both scant resources can be put to the best possible use. Critically evaluating each book's value for people with moderate - severe M.E. in particular was the goal. Reviews by other authors have also been included where possible.

Breaking news! The first HFME M.E. book is now available!

This book provides essential information for anyone who knows, loves or provides care for someone with M.E. - sourced from the world's leading M.E. experts.

The book 'Caring For The M.E. Patient' by Jodi Bassett includes a Foreword by one of the world's leading M.E. experts, Dr Byron Hyde.

He writes:

"There is so much false information that is picked up and disseminated it is near impossible to hold one’s head above the water and sift through this morass of misinformation. Any attempt to seek the truth is always a major difficulty. Somehow, Jodi Bassett and Hummingbird have managed to plow through this field of weeds."

"This is a book that deserves being read, not only by patients and physicians with an interest in M.E. but the bureaucrats in the USA Centers for Disease Control who have done so much damage to the understanding of M.E.  I recommend her book to all and wish it every best success."

Click here for purchasing information.


From the back cover:

For friends, family and partners: Your friend or family member may be just as ill and disabled as someone with M.S., yet have almost no appropriate social support at all. They may also be dealing with serious medical neglect or even overt abuse. This happens due to the deliberate, financially and politically motivated confusion between the distinct and measurable neurological disease M.E. and the vague fatigue-based wastebasket diagnosis of 'CFS'. These are two entirely different entities. Find out what is really going on and why.

Learning the facts is not time-consuming or complicated, and may improve both the patient's quality of life, and your relationship with them. You can help the person in your life that has M.E. Supporting your ill friend or family member more fully by being aware of the basic facts of M.E. could make all the difference in the world to them. This book shows you how.

For medical professionals: Patients with M.E. have some care needs which are common to a variety of other diseases, and others that are unique and with which hospital staff, doctors or carers may be wholly unfamiliar. If you are providing care for someone with M.E., you will find knowledge of some of the basic M.E. facts vital in order to avoid additional unnecessary suffering and disability.

Taking a small amount of time to learn the facts about the disease can make an enormous difference to the M.E. patient's quality of life and prognosis. It could even be life-saving. Providing appropriate care and support for the M.E. patient could make all the difference in the world to them. This book shows you how.

The best books on Myalgic Encephalomyelitis 

The Best books on Myalgic Encephalomyelitis section includes:

 

* Note: The two books The Clinical and Scientific Basis of M.E. and Missed Diagnoses: Myalgic Encephalomyelitis & Chronic Fatigue Syndrome are absolutely essential for everyone who has M.E., or has an interest in M.E.

Also essential are the following papers by Dr Byron Hyde. available for free online: A New and Simple Definition of Myalgic Encephalomyelitis and a New Simple Definition of Chronic Fatigue Syndrome & A Brief History of Myalgic Encephalomyelitis & An Irreverent History of Chronic Fatigue Syndrome and The Complexities of Diagnosis.

Dr Hyde's latest paper is also a MUST-READ: The Nightingale Definition of M.E.

The book Missed Diagnoses: Myalgic Encephalomyelitis & Chronic Fatigue Syndrome contains a copy of The Complexities of Diagnosis plus The Nightingale Definition of M.E.  and the second edition also contains a further new paper on M.E. (a chapter from a recent book)

Also essential reading are all of the papers by Dr Elizabeth Dowsett. See: The Late Effects of ME and Redefinitions of ME - a 20th Century Phenomenon and other papers on the Dr Dowsett page.


Before reading the research/advocacy information given in the book reviews and books on this page, please be aware of the following facts:

1. Myalgic Encephalomyelitis and ‘Chronic Fatigue Syndrome’ are not synonymous terms. The overwhelming majority of research on ‘CFS’ or ‘CFIDS’ or ‘ME/CFS’ or ‘CFS/ME’ or ‘ICD-CFS’ does not involve M.E. patients and is not relevant in any way to M.E. patients. If the M.E. community were to reject all ‘CFS’ labelled research as ‘only relating to ‘CFS’ patients’ (including research which describes those abnormalities/characteristics unique to M.E. patients), however, this would seem to support the myth that ‘CFS’ is just a ‘watered down’ definition of M.E. and that M.E. and ‘CFS’ are virtually the same thing and share many characteristics.

A very small number of ‘CFS’ studies refer in part to people with M.E. but it may not always be clear which parts refer to M.E. The
A warning on ‘CFS’ and ‘ME/CFS’ research and advocacy paper is recommended reading and includes a checklist to help readers assess the relevance of individual ‘CFS’ studies to M.E. (if any) and explains some of the problems with this heterogeneous and skewed research.

In future, it is essential that M.E. research again be conducted using only M.E. defined patients and using only the term M.E. The bogus, financially-motivated disease category of ‘CFS’ must be abandoned.

2. The research referred to on this website varies considerably in quality. Some is of a high scientific standard and relates wholly to M.E. and uses the correct terminology. Other studies are included which may only have partial or minor possible relevance to M.E., use unscientific terms/concepts such as ‘CFS,’ ‘ME/CFS,’ ‘CFS/ME,’ ‘CFIDS’ or Myalgic ‘Encephalopathy’ and also include a significant amount of misinformation. Before reading this research it is also essential that the reader be aware of the most commonly used ‘CFS’ propaganda, as explained in A warning on ‘CFS’ and ‘ME/CFS’ research and advocacy and in more detail in Putting research and articles on Myalgic Encephalomyelitis into context.

More book reviews

The Other excellent books (or whcih are at least excellent in parts) on Myalgic Encephalomyelitis section includes:

Novels (etc) involving M.E. and/or M.E. sufferers:

Novels mentioning M.E. etc. reviewed on Amazon:


The Books with some good parts BUT also some very problematic parts section includes:


The Books not directly related to Myalgic Encephalomyelitis section includes:

Note that this last two books in particular are NOT recommended


 The Myalgic Encephalomyelitis and 'CFS' books best avoided (or burned) section includes:

  1. Adrenal Fatigue: The 21st-Century Stress Syndrome.
  2. Conquering Chronic Fatigue: Answers to America's Most Misunderstood Epidemic.
  3. Chronic Fatigue Syndrome: Your Natural Guide to Healing with Diet, Vitamins, Minerals, Herbs, Exercise, and Other Natural Methods.
  4. Chronic Fatigue Syndrome and the Yeast Connection: A Get-Well Guide for People With This Often Misunderstood Illness--And Those Who Care for Them
  5. America Exhausted: Breakthrough Treatments of Fatigue and Fibromyalgia.
  6. Tired of Being Tired: Overcoming Chronic Fatigue & Low Energy 
  7. Living Well with Chronic Fatigue Syndrome and Fibromyalgia : What Your Doctor Doesn't Tell You...That You Need to Know 
  8. Gentle Medicine : Treating Chronic Fatigue and Fibromyalgia Successfully with Natural Medicine
  9. Alternative Medicine Guide to Chronic Fatigue, Fibromyalgia and Environmental Illness
  10. Facing and Fighting Fatigue : A Practical Approach
  11. M.E., Chronic Fatigue Syndrome and Fibromyalgia - The Reverse Therapy Approach by John Eaton
  12. Recovering from M.E.: A Guide to Self-empowerment by William Collinge
  13. Chronic Candidiasis: How You Can Benefit from Diet, Vitamins, Minerals, Herbs, Exercise and Other Natural Methods by Michael T. Murray, Jennifer Basye Sander (Editor)
  14. Chronic Fatigue Syndrome: The Facts by Michael Sharpe, Frankie Campling
  15. Overcoming Chronic Fatigue by Mary Burgess, Trudie Chalder
  16. Self Help for Chronic Fatigue Syndrome: A Guide for Young People by Trudie Chalder, Kaneez Hussain
  17. Counselling for Chronic Fatigue Syndrome by Trudie Chalder, Alicia Deale
  18. Coping with Chronic Fatigue (Overcoming Common Problems) by Trudie Chalder (Introduction by Simon Wessely)
  19. When You Want to Say Yes, But Your Body Says No: The Proven Mind-body Plan to Beat Chronic Fatigue and Stress-related Illness by Liz Tucker
  20. Chronic Fatigue Syndrome: There Is a Cure by Patricia J. Taylor
  21. Chronic Fatigue Syndrome: A Natural Way to Treat M.E. by Basant K. Puri, Professor Basant K Puri
  22. The Natural Way to Beat Depression: The Groundbreaking Discovery of EPA to Successfully Conquer Depression; Paperback ~ Basant K. Puri, Hilary Boyd
  23. The Chronic Fatigue Healing Diet (Overcoming Common Problems S.); by Christine Craggs-Hinton
  24. Chronic Fatigue Syndrome, ME and Fibromyalgia: The Long Awaited Cure; by David Mickel
  25. Erica White's Beat Fatigue Handbook: Break Free from Chronic Fatigue for Good by Erica White
  26. Tired So Tired: And the Yeast Connection by Bernard Rimland (Foreword), et al
  27. Living with a Long-term Illness by Frankie Campling, Michael Sharpe
  28. Chronic Fatigue Syndrome: The Facts by Michael Sharpe, Frankie Campling
  29. Can God Help M.E?: Hope for Those Suffering from Chronic Fatigue Syndrome by Liz Babbs
  30. Understanding Chronic Fatigue Syndrome: Better Ways of Managing Your Lifestyle by Alastair Jackson
  31. Hiatal Hernia and Chronic Fatigue Syndrome: And Many Other Diseases Healed Naturally Through the Power of Cause and Effect by Patricia Ann Hellinger
  32. Chronic Fatigue, Fibromyalgia, and Lyme Disease by Burton Goldberg, Larry Trivieri
  33. Conquering Chronic Fatigue: Answers to America's Most Misunderstood Epidemic
  34. Silent Hypothyroidism/Fibromyalgia/Yeast Overgrowth Syndrome/Chronic Fatigue Syndrome by Jonathan Forrester
  35. Herbs for Chronic Fatigue by Kathi Keville
  36. Acupuncture Physical Medicine: An Acupuncture Touchpoint Approach to the Treatment of Chronic Fatigue, Pain and Stress Disorders by Mark D. Seem
  37. Bible Cure for Chronic Fatigue and Myalgia: Ancient Truths, Natural Remedies and the Latest Findings for Your Health Today by Don, M.D. Colbert
  38. Chronic Fatigue and Tiredness: A Self Help Program by Susan M Lark
  39. The Downhill Syndrome: If Nothing's Wrong, Why Do I Feel So Bad? by Pavel Yutsis, Morton Walker
  40. ME (Chronic Fatigue Syndrome) and the Healer Within by Nick Bamforth
  41. Chronic Fatigue: Poisoned by the Mercury in Your Mouth? by Annika Jeppsson-Mcclintock, Christer Malmstrom
  42. Eighteen Natural Ways to Beat Chronic Tiredness by Norman D. Ford
  43. The Bowersox Protocol for Fibromyalgia and Chronic Fatigue by Dr. Harold Bowersox
  44. Chronic Fatigue Busters: What to Do When Your Doctor Gives Up by Crystina O'Brien
  45. Energy Drainers, Energy Gainers: Solutions to Chronic Fatigue by Paul Reisser
  46. Chronic Fatigue (ME Association Special Edition) by Netdoctor
  47. Doctor- Why Am I So Tired?: Discover and Overcome the Hidden But Real Medical Causes of Chronic Fatigue by Podell Richard N.
  48. User's Guide to Chronic Fatigue and Fibromyalgia by Laurel Vukovic
  49. Bailliere's Clinical Psychiatry: Psychosocial Aspects of Chronic Fatigue Syndrome (Bailliere's Clinical Psychiatry S.)  S. Lynch (Editor)
  50. Chronic Fatigue: The Silent Epidemic by William Vayda
  51. How to Have Super Energy in a World of Chronic Fatigue by Robert Atkins
  52. Recovering from Chronic Fatigue Syndrome: A Guide to Self-Empowerment by William Collinge
  53. Curing Fatigue: A Step-By-Step Plan to Uncover and Eliminate the Causes of Chronic Fatigue by David Sheffield Bell, Stef Donev
  54. Tired All the Time: How to Regain Your Lost Energy by Ronald L. Hoffman
  55. From Fatigued to Fantastic!: A Manual for Moving Beyond Chronic Fatigue & Fibromyalgia by Jacob Teitelbaum

Note that none of these books is recommended

(Note that not all of these books have been reviewed yet, merely categorised)

A reading guide for M.E. patients

A large number of books and articles are recommended on the HFME site. This reading guide aims to offer a simplified reading guide to patients.

 

What to read if you want to understand M.E. and its symptoms better

1. All books by Dr Byron Hyde:

All the articles on the Dr Hyde page on HFME, including: A New and Simple Definition of Myalgic Encephalomyelitis and a New Simple Definition of Chronic Fatigue Syndrome & A Brief History of Myalgic Encephalomyelitis & An Irreverent History of Chronic Fatigue Syndrome and The Complexities of Diagnosis.

2. All of the papers by Dr Elizabeth Dowsett. See:The Late Effects of ME and Redefinitions of ME - a 20th Century Phenomenon and other papers on the Dr Dowsett page.

3. The Caring for the M.E. Patient book by Jodi Bassett.

4. Articles on the HFME site including:

Plus articles which talk about the importance of avoiding overexertion, including:

5. Stricken by Peggy Munson and Shattered: Life with ME by Lynn Michell are good books for understanding what M.E. symptoms are like to live with (although they are not recommended for their political and historical information). The books In the Shadow of Memory, The Night Side and A World of Light by Floyd Skloot are also useful, to a lesser extent.

 

What to read to learn more about testing for and diagnosing M.E.

1. The Nightingale Definition of M.E. by Dr Hyde

2. A New and Simple Definition of Myalgic Encephalomyelitis and a New Simple Definition of Chronic Fatigue Syndrome & A Brief History of Myalgic Encephalomyelitis & An Irreverent History of Chronic Fatigue Syndrome and The Complexities of Diagnosis by Dr Hyde

3. Testing for M.E. by Jodi Bassett, on HFME

4. Testing for M.E. - Plan D by Jodi Bassett, on HFME

Note that none of the various redefinitions of 'CFS' such as the Canadian Criteria or the ICC are recommended for use in diagnosis as neither of these criteria describes or defines M.E.

 

What to read if you want to understand M.E. politics and history better

1. All of the books and articles by Dr Hyde, as listed previously.

2. All of the articles by Dr Dowsett, as listed previously.

3. The Caring for the M.E. Patient book by Jodi Bassett.

4. The most important HFME activism and advocacy papers are:

 

What to read if you want to learn more about diet and nutrition and treating and improving M.E.

1. The Health, Healing & Hummingbirds website and ebook by Jodi Bassett. This website summarises over 100 of the best books on health and nutrition as well as lots of information from the world's leading M.E. experts. Readers are advised to read this information first and then look into other books as specific extra information is needed.

2. If extra information is needed, books such as the following are recommended:

  • Detoxify or Die by Dr Sherry Rogers
  • Primal Body, Primal Mind by Nora T. Gedgaudas. This book also has a website.
  • Curing the Incurable or Primal Panacea by Dr T Levy
  • No More Heartburn: The Safe, Effective Way to Prevent and Heal Chronic Gastrointestinal Disorders by Sherry A. Rogers.
  • The GAPS Diet book
  • Eat Fat, Lose Fat by Sally Fallon. This book also has a website.
  • Orthomolecular Medicine For Everyone: Megavitamin Therapeutics for Families and Physicians by Abram Hoffer

Which of these books is best for you, or best for you to start with, will depend on your individual needs. Patients are advised to read as much as they can of the HHH site first and then to read the book reviews for each book to work out which book may best suit them at the current time.

 

The most important books and papers to recommend to patients misdiagnosed with 'CFS' that do not have M.E.:

1. Missed Diagnoses: Myalgic Encephalomyelitis & Chronic Fatigue Syndrome by Dr Hyde.

2. HFME articles such as:

 

The most important books and papers to recommend to carers

1. The Caring for the M.E. Patient book by Jodi Bassett.

2. HFME papers such as:

 

The most important books and papers to recommend to friends and family members

1. The Caring for the M.E. Patient book by Jodi Bassett.

2. HFME papers such as:

 

The most important books and papers to recommend to doctors

1. All of the books and articles by Dr Hyde, as listed previously, most especially The Nightingale Definition of M.E. by Dr Hyde

2. The Caring for the M.E. Patient book by Jodi Bassett.

3. HFME papers including:

 

Amazon booklists

You may also like to look through The HFME Amazon M.E. Listmania Lists

There are two lists. The first list focuses on books about M.E. politics, history and treatment and why M.E. is not 'CFS.' The second list focuses on books about nutritional medicine, diet and supplements and how to improve your health if you have M.E.

Amazon list 1: The Essential Myalgic Encephalomyelitis (and 'CFS') Reading List 2012

Amazon list 2: Myalgic Encephalomyelitis Health Improving Books 2012

Help support the HFME via Amazon shopping!

You may also like to look through The HFME Amazon M.E. Listmania Lists
 
There are two lists. The first list focuses on books about M.E. politics, history and treatment. The second list focuses on books about nutritional medicine, diet and supplements and how to improve your health if you have M.E.

 
 
These lists link to and lets you purchase (or find out more about) many of the M.E. books recommended here, at Amazon.com (a US based online bookshop). 
 
Amazon sell both new and used (often out of print) books and the Listmania list saves you the effort of having to individually search for each book title separately. I would recommend that you read the reviews here first before purchasing as they are much more comprehensive however.

If you buy books through using this Amazon link, a small percentage of your order total will be  donated towards the HFME's advocacy efforts.

You can also help the HFME by giving our Amazon List a 'helpful' rating on the Amazon website, and by voting that reviews made by HFME members, or those with a reasonable grasp of the facts and that post factual reviews and do not merely repeat useless 'CFS' or 'ME/CFS' myths, are 'helpful.' (If you have in fact found them helpful!) The higher reviews and lists are rated, the more likely they are to be viewed and the goal of the HFME is to get this information ot as many patients as posisble.

Future book reviews

  • Why Freud Was Wrong: Sin, Science, and Psychoanalysis by Richard Webster
  • Making Us Crazy: DSM - The Psychiatric Bible and the Creation of Mental Disorders (Psychology/self-help) by Stuart A. Kirk
  • Illness as Metaphor & AIDS and Its Metaphors by Susan Sontag
  • The Greatest Benefit to Mankind: A Medical History of Humanity by Roy Porter
  • Surviving Severe ME by Claire Wade
  • Brave Hearts - poetry by young people with ME'
  • Chronic fatigue syndrome is a real pain by Linda Wylie
  • Handbook of Chronic Fatigue Syndrome by Leonard A. Jason
  • Chronic Fatigue Syndrome, Genes, and Infection: The Eta-1/Op Paradigm by Roberto Patarca-Montero
  • The Virus Within : A Coming Epidemic by Nicholas Regush
  • Science in the Private Interest : Has the Lure of Profits Corrupted Biomedical Research? by Sheldon Krimsky
  • The Virus and the Vaccine : The True Story of a Cancer-Causing Monkey Virus, Contaminated Polio Vaccine, and the Millions of Americans Exposed by Debbie Bookchin
  • Emerging Illnesses and Society : Negotiating the Public Health Agenda - Randall M. Packard
  • Making Us Crazy: DSM - The Psychiatric Bible and the Creation of Mental Disorders (Psychology/self-help) by Stuart Kirk
  • Post-viral Fatigue Syndrome: Myalgic Encephalomyelitis Rachel Jenkins (Editor), James Mowbray (Editor)
  • Myalgic Encephalomyelitis: Post-viral Fatigue Syndrome and How to Cope with it - Celia Wookey

These are the books I hope to be able to review in the future (as finances allow). Note that this is anything but a list of recommended books! Please email with any further book title suggestions.

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Exciting book news!

Click here to purchase the first HFME book!


The book 'Caring For The M.E. Patient' by Jodi Bassett includes a Foreword by international M.E. expert Dr Byron Hyde.

He writes:

"There is so much false information that is picked up and disseminated it is near impossible to hold one’s head above the water and sift through this morass of misinformation. Any attempt to seek the truth is always a major difficulty. Somehow, Jodi Bassett and Hummingbird have managed to plow through this field of weeds."

"This is a book that deserves being read, not only by patients and physicians with an interest in M.E. but the bureaucrats in the USA Centers for Disease Control who have done so much damage to the understanding of M.E. I recommend her book to all and wish it every best success."

Paperback $18.95
Hardcover $22.95